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OK! Maybe Im Crazy...
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Blue Duck    Posted 07-19-2003 at 06:11:56       [Reply]  [No Email]
My wife has Fibromialgia ( a disorder that causes the bodys immune system to attack various parts of the body as if it were a foreign matter to get rid of it...hers attacks her muscles and joints. )...anyway...

There is NO cure for this and Dr.s dont even know what acctually causes it. I was thinkin about doing a fund raiser for a FM research foundation....What ya'll think of this Idea...

I will build a chuck wagon (from scratch) and using a team of draft horses, and a support caravan of trucks w/supplies. I will drive the chuck wagon along the entire length of the Santa Fe Trail (or as losed to it as possible). I will get sponsors for everything that I need and accept pledges for every mile "officially traveled" on the chuck wagon. Heres the fun part...I will do all of this while wearing 1850 authentic clothing...will camp authenticaly...and will cook authenticaly. In short, It will be a "living history reenactment" of life on a trail chuck wagon.

What Ya'll think?

judy    Posted 07-19-2003 at 15:47:10       [Reply]  [Send Email]
I think that this is a wonderful thing you are doing for your wife and Fibromyalgia suffers every where. First of all to clear up some of the ignorance of fellow posters regarding this disabling disorder, I can assure you that it is not all in your wife's mind. That is unless you consider it so because it is being proven to be a neurological disorder. I don't believe that the Medical Association would be putting the effort and money into all of the research if they believed Fibromyalgia=Laziness. I'm sure the poster who mentioned their observation regarding their neighbor (at least I hope not)does not watch or know their every move. The times calls may come and she can't make it. The time she spends at the doctors office. The meds she takes and the times she spends crying because she can't do the things she used to do. As you may have figured out by now, I too suffer with this mysterious desease. Yes, I work Full-Time, clean my house, cook, do laundry and on occaision have been known to smile and laugh. The fact remains that I am in constant pain. Meds help some, but do not make it go away. Fatique hits so bad at times that I am afraid to drive. Stiffness and pain are so extreme at times that I cry just standing from a sitting position. Truth is that I function but at about a tenth of the ability I had before the Fibromyalgia hit me like a Mac Truck. Please don't listen to people like the neighbor spy or people who insist on making judgements about something they know little or nothing about. My husband is actually a member of this board and read your post to me and then the follow-ups. I'm not sure who was more angry him or me. Your wife is a lucky lady (as I am) to have a husband who is not only understanding but beleives her when she tells him she is hurting. Best of luck with this project and in everything you do. Give your wife a gentle hug for me.

Willy-N    Posted 07-19-2003 at 16:27:29       [Reply]  [No Email]
Must be me your talking about. I don't spy on them they are real good freinds and she has worked for us at home and is on the fire dept also that I am on. I see them all the time her husband and I work on tractors together. I here the inside scoup even if I don't want to. Like I said it is in the minds of some and a health problem with others. She is also over weight big time and complains it is hard to move around. If I had 150 pounds of extra weight on my body it would also be hard. She loves to eat, but if I was having those problems I would lose the weight to help lower the stress on my body. My sister is having problems with her heart, blood presure and ankles but she also out weights me by 150 plus pounds. I tell her she needs to lose weight to help with the problem and she still eats tons of junk food but takes her meds?? My brother is the same way. Funny part is I smoke and know it is bad and they tell me to quit because it is bad for my health. But I am in good health and they are not. Hard to tell others that being over weight is hard on your body and health even tho the problem is rampet in the US and doctors talk about how it is as bad as smokeing. I just wonder how many people would feel better if they lost weight? I love being told to quit smoking by a person with a Big Mac in one hand and haft gallon size coke in the other say it is bad for me. Now they want to sue McDonalds for being over weight? I do feel for people who have health problems. My mother died of Cancer and had Sugar Diabetus, never smoked or drank. But she loved to eat and was in the same boat as my brother and sister is now. I allways wonderd if she would have lived longer if she was not so heavy. I just know some bring it on themselves by the way they live and that can be changed. And I pray for the health of others who can do nothing about it. Life is a crap shoot and some get delt a bad hand in life. Mark H.

Ludwig    Posted 07-20-2003 at 08:24:22       [Reply]  [No Email]
Mark I'm with you on the overweight thing. By the books I'm 70lbs overweight but slowly (oh so slowly) working it down. Mostly because I'm sort of lazy about it. I picked up about 40lbs after I left college and got a desk job. I've lost about 20 of that in the last 3 years but its some hard.

The trouble is that food is SO prevalent in our society. Every place you look its there, you smell it as you drive by, etc. I also really like eating, I like the texture, the smell, the feeling I get when I'm comfortably full sitting on the couch sipping coffee and reading a book.
Then the food industry is out to get us with portion sizes that are too big. I see people complain about "too little portions" and thats usually crap. They get what they should be having and call the restaurant stingy.

I think you're right if nearly everybody in the US dropped 50# today we could probably see our nationwide health costs drop 50%. Think about that if on average we could all drop 50#. People like you or my Dad wouldn't have to lose anything, but people like me could lose extra to make up for it. Theres what, 600,000,000 people in the US? That'd be 30,000,000,000#?

Willy-N    Posted 07-20-2003 at 22:00:44       [Reply]  [No Email]
You can do it! At least with over eating you still get to do it just not as much. Stopping smoking you have to stop not just smoke less! I have trid to stop, now I just keep it to a pack of lights a day no more. As far as eating I don't have to many pairs of jeans and if I gain a pound to much they don't fit so I know when to cut back a little. I just don't buy more cloths to keep them fitting right! Mark H.

ret    Posted 07-19-2003 at 17:02:01       [Reply]  [No Email]
I can see you don't know anything about weight loss. Easy to look at a person and tell them to lose weight.. Medical profession has finally come around to the fact that some people can't keep it off. Not due to overeating, just the way the body they have works.

Reddee    Posted 07-19-2003 at 17:06:22       [Reply]  [No Email]
Golly Willy-n You're getting it from all angles this evening aren't ya?? I know... I bet there trying to quit smokin'. I've heard it tends to make one a bit TESTY!!! LOL Redd

judy    Posted 07-19-2003 at 17:49:51       [Reply]  [Send Email]
You will find that there are all sorts of addictions in this world Willy. If it's not smoking, it's drugs , alcohol, food or a combination of all of the above. It is not possible for us to make a fair judgement as to why someone has the addiction and offering an uneducated solution to their problem is not likely going to help. Most people with addictions are fully aware that they have a problem, they just don't have the ability to correct it on their own. They may not know which way to turn so they talk about it to friends, family,and/or on-line forums such as this one to connect with others for some gentle understanding
not critisizm and harsh judgement. Talking about our problems, be it addiction , mental or physical illness is not always a sob story or complaint. Sometimes people just want to connect. To know that they are accepted and are not alone in this world. They may be looking for advise or support from others who are going through the same things and could offer constructive and positive advise. People should not have to defend the way they are and explain it to everyone that passes judgement on them. When you feel someone is "complaining" too much maybe it would be best for you to just walk away. If overweight people offend you then look in the opposite direction. BTW, I can only judge you by your posts here and you really don't seem like a bad person. A little misguided maybe LOL, but not a bad person at all. Next time you light up (I smoke too) ask yourself who you may be offending. Think about what you may say in defense of your habit. Last but not least, ask yourself what you would most want to hear from friends and loved ones when the emphezema or lung cancer might hit. It likely won't be "well Willy, you did it to yourself so keep it to yourself". As for me, I wish you the very best.

Willy-N    Posted 07-19-2003 at 20:12:07       [Reply]  [No Email]
Sorry for the Over Weight kick I was on. I get it all the time about smoking from others. I was just doing the same thing about another problem that is rampet over eating. Seems it causes a lot of the same problems as smoking except Emphezema. I don't smoke around people who don't smoke. I have seen my brother at the weight of 185 lbs and realy heathey for many years. Now he is pushing 375 pounds and is not the same person health wise. It is affecting him right now but he will allways over eat now he loves his food. If my smoking made me feel bad and was causeing me to be sick and have problems I am sure I would quit. Mark H.

toolman    Posted 07-19-2003 at 16:11:21       [Reply]  [No Email]
hi judy and blue you can probably tell from my posts , i too suffer from this disease, i,ve always worked, coal mining, both underground and strip, run heavy equipement ,logged and conct. just to name a few, rebuilt cars, trucks, tractors , and still do just not like before some days i can hardly walk to the shop because of stiffness or bein sore not to mention tired, my shop is where i like to spend most of my time, workin on machinery,until you live with something like this as you judy or blue ducks wife does i don,t think a person is qualified to make statements like "it,s all in a persons head"everybody deals differently with things and some can cope better than others, i just put 8 ton of hay in the barn ,without the help of my wife i wouldn,t of been able to do it,when the weather is cold an wet like in the spring and fall it seems worst for me , i know of others who have a hard time all the time, i look at this as just something i have to deal with and get on best as i can, but i do know it,s real and certainly not in my head, to you judy and blue ducks wife i wish you all the best as i know it,s a tough thing to deal with and it sounds like your lucky enough to have a spouse that reconizes and understands what your living with , good luck.

Willy-N Plans Cheap!    Posted 07-19-2003 at 14:09:36       [Reply]  [No Email]
Here is a place that sells all kinds of plans cheap too! Take a look at the link. Mark H.

Willy-N    Posted 07-19-2003 at 11:42:11       [Reply]  [No Email]
I have a neibor who has it. I have seen her sit in a chair all day complaining of the pains. Can't do much around the place anymore. She became a Medic and when she gets called out the dreneln kicks in and she jumps up gets dressed drives to town dose a 12 hour shift just fine till she gets home and sits back on her chair waiting for another call? I ask her why don't you excersise to feel better and she tells me I can't it hurts to much? Just can't figure how she moves so good when called out but not any other time. I belive it is in her mind because she sits all day and dose not move much. I know if I did that it would only take a day or so and I would be wiped out! The only way I keep from having sore mussles is to work around the place every day doing something. The body has to move and have a mission or it starts to shut down and quit. The pills for it to me just makes things worst in my mind. Good Luck on you adventure it sounds like fun. Mark H.

Blue Duck    Posted 07-19-2003 at 15:33:02       [Reply]  [No Email]
The body is an amazing, remarcable machine. Each body part, organ needing each other to work and function properly. I can tell you that my wifes sympoms become agrivated by stress, and what is one of side affects of stress? Its an adrenalin dump is caused by stress, fear, action or what have you, adrenalin is still adrenalin.
Fibro usualy has many contributing factors, that attack many parts of the body, sometimes gradually, one at a time, or all at once. My wife suffers from the muscular/joint type. What we have been able to do is to control the pain WITHOUT pain meds, and steroids most commonly given by quacks...uh...Doctors...? Weve found that a good diet with home grown, orgainic, foods (yes both meats and vegies) has helped the most. We avoid store bought ANYTHING unless the lable reads that it has NOTHING artificial.
Makes me think...When did all these strange weird deseases strat poping up and rearing their big ugly heads? Could it be when the USDA and the FDA started poking around and saying that certain chemicals were ok. Did you know that ESTROGEN is the LARGEST seller of ALL pharmicuticals? Also, look at how many products contain soy anythings...yes, estrogens are needed by the FEMAIL body to function properly, but look at how many men are now inadvertantly taking in estrogens by what they wonder we have an epidemic of homos. (sorry)
Proccessed sugars, flours, yeasts, etc. are all things that candida thrives on (candida is a yeast the lives on aand in all people but can become overgrown internally, attacking nerves, muscle,organs, and in sever cases, the brain.)Candida need fat to survive, and excessive estrogens help to create fat...HMMMMMMMmmmmmm...

I could go on and on about MY theories, and about my wifes medical history...but Ill get off my soap box now..

Willy-N    Posted 07-19-2003 at 16:01:34       [Reply]  [No Email]
One reason we raise/grow 90% of our food and careful about the rest we buy!! Mark H.

Ron,Ar    Posted 07-19-2003 at 16:06:14       [Reply]  [No Email]
Whats that old adage? "We are what we eat"

Willy-N    Posted 07-19-2003 at 16:30:46       [Reply]  [No Email]
Told the wife last night give me less Ice Cream, I think I am gaining some extra pounds. You don't want me to look like my brother do you? She said no and I got cheated with a 1/2 bowl the next day! She rememberd. Mark H.

Reddee    Posted 07-19-2003 at 16:54:52       [Reply]  [No Email]
LOL!! SEE??? Let 'em try 1/2ing my cigs!!! Keep the ice cream...Give me back my smokes!!(I'll get up about 12:30a and get my bowl of ice cream anyway)! LOL Redd

Willy-N    Posted 07-19-2003 at 17:02:30       [Reply]  [No Email]
Cigs are my only enjoyment Vice left! LOL!!! Mark H.

toolman    Posted 07-19-2003 at 12:52:50       [Reply]  [No Email]
the reason she sits around mark is when you have that you usually also have something called "chronic fatigue syndrome" and your usually tired all the time, as well and have to really force yourself to get movin and after awhile as it gets worse it feed off each other, i read that what can bring this on is living with chronis pain for a long time and with my back problems i kind of belive it, some days are better than others and some times are better than others,you are right when your doin something you do feel better but it,s hard to sometimes, nearly impossible to get going add to that the flusteration and even depression that sets in and you wouldn,t even want to wish it on your worse enemy. not a good thing.

Willy-N    Posted 07-19-2003 at 13:45:57       [Reply]  [No Email]
I have a 30 year old daughter living away from home. She has it or at least that is what the doctors said. She now dose not work (left a good job) but can still party up a good storm! I think it is a cop out for her cause she can do everything the same but work for a living. The pills they give her just make things worst but you can't tell her we all hurt some what after work. That is why they call it work. I am not saying this dose not exsist, but I feel the doctors are getting a big kick back getting people to think they have it and the cycle never ends. More pills, more visits to the doctors, more pains found?? Mark H.

Reddee    Posted 07-19-2003 at 16:12:09       [Reply]  [No Email]
I have a sister'n'law who has it and believe me she milks it for all it's worth!! She is considered diabled (mentally is my opinion)so she hasn't worked in YEARS. Completely and totally lives off the government. She even had a "caregiver" for awhile..I think until they caught on she didn't really need one...DUHHH!! She even asked me if I was interested in becoming her caregiver..(I work as one, for the elderly)..I laughed at her and said I'd pass thanks!! Now every Friday night she'll be dressed to the hilt and steppin' out on the town. For a girl whose disabled because her muscles hurt she was sure moppin up the dance floor!! I've witnessed this embarrassment to the family!! Anyway she was the first I knew who has Fibro so it sorta didn't set to well with me.. Oh, Fibro this..and that.. waaaaahhh! Understand I really knew nothing about this disease if just know her and figured it was another case of a hypercondriac. Well A few years ago my Mother calls me one day to inform me she got it...Fibro.. Ahhh Geez Ma!!! Because of my at hand experience with the in law I was a little less than sympathetic, probablly even sarcastic. I hurt her feelings and had to apologize..felt bad about it for awhile..the whole nine yards. BUT!!! My mother works a 50 hr a week job, takes care of my 93 year old Grandma_at home and with the help of the meds keeps it under control!! I for one think this a new phase the Docs are going through and diagnosing everyone with it. Kinda like the kids and ADD and ADHD!! Some have it for real while alot of others are just being medicated for it. Fibro..another welfare scam for a lot..ADD & ADHA another excuse to not hold the parents responsible for their behavior. Hey we Americans can find an excuse for anything!!! Redd

toolman    Posted 07-19-2003 at 14:13:10       [Reply]  [No Email]
probably right, everybody handles things differently, i try to do what i,ve always done, work hard, but some days i find im a little slower or have to try a little harder, it,s a bad thing to have happen to someone though and because it,s fairly new the doc,s and people don,t know much about it so it,s hard for people to understand it, like i always thought people with bad backs were just lazy till i broke mine and now live with a bad back.must be hot there huh it,s 98 here in the shade.

Willy-N Yes HOT!    Posted 07-19-2003 at 16:37:13       [Reply]  [No Email]
It is Hot 97 and going up! Glad it is 8% humidity for one reason but on the other hand everything is at a high flash point because of it! We need some rain fast or there won't be anything left to water soon! Mark H.

toolman/hit 100    Posted 07-19-2003 at 16:42:37       [Reply]  [No Email]
was just out mowin the lawn hit 100 finished the back figured i,ll do the front tonight after supper , yup everyuthing is starting to turn brown here , and supposed to be like this for at least the next ten days hope they are wrong this time and some rain comes along sure do need it for the pastures and whats left of the lawn .

Willy-N    Posted 07-19-2003 at 17:00:26       [Reply]  [No Email]
Nothing green here at all! Turned brown a long time ago. I know where you are coming from on your problems. I worked construction all my life and my knees and back are shot. That is my health problem. I cannot work bending over anymore or it takes me a long time to stand up. I also can't sleep on my side at all. On my back is not much better but I have to sleep! I get pains in my mussles but just live with it. I can't take meds or I would have to quit my school bus driving job. Don't want to get strung out on them also. Side affects are allmost as bad like the liver problems and such. My backs upper & lower mussels will get so tight they will be like iron. I just figured it was because I worked to many years carring things on my sholders and head at work and now I get to pay for it with some pain. I have to keep moving all the time or I will stiffen up. The fun part of growing old. Figure when I am around 70 the pills will work for me still and won't live long enought for them to ruin anything else. Mark H.

toolman    Posted 07-19-2003 at 17:12:38       [Reply]  [No Email]
remember the old sayin ;if i had know i was gonna live this long i would of taken better care of myself :lol i got one up on ya though i quit smokin about 2 years after i quit drinking about 22 years ago, course except for the ocassional hangover i was real healthy back then haha .

Ron,Ar    Posted 07-19-2003 at 10:28:18       [Reply]  [No Email]
I know several folks with Fibromialgia, mostly women or a few men who do little physical activity. Dr. described it as more of a symptom than a disease.As someone here said a lot of it is mental. An article I read says a generation of couch potatoes has spawned this, and that many "real"ailments are sometimes lumped together as this illness. I have my oun personal opinions about it tho I won't share them. he he he

Blue Duck    Posted 07-19-2003 at 15:39:26       [Reply]  [No Email]
Please read my other post above. Also, unless you have it or are VERY close to someone who has just dont know...especially that Dr you talked to...ask that Dr if he acknowledges the existance of Candida.

And to any more of you naysayers...Ill tell you this much...My wife is anything BUT a couch potato, and its certainly NOT a mental thing!

Ron,Ar    Posted 07-19-2003 at 16:40:36       [Reply]  [No Email]
Well, since you sorta asked, I do know several people who are diagnosed with this. One works in a hospital in Little Rock, another has done in-home health care. Of the more than half dozen people I know who suffer from this most have worked in health care industry. Is there a connection? I don't know but I think that was mentioned in a couple post here.I have two SIL with this and both are real active with no problems or pain doing their hobbies and activities which in both cases are very physical. But they are absolutly unable to do anything as far as housework is concerned. Just lay around and moan. Mention go and they beat ya out the door. The point the Dr made was that many other ailments are sometimes lumped together and given this name in error. My personal idea is that too many Dr.s unable to diagnois a patient simply say "sounds like fibromialgia". One of the people that I know very well has spent all his grown life trying to get on disability. As a matter of fact all his family is on some sort of disability or another. Don't keep them out of the deer woods or beer joints tho. Didn't say there are not true cases of this disease but it is very easy to be declared as a sufferer of this without actually having it. It has been called the new welfare cash cow. I have spent a lot of time in hospital waiting rooms the last 2 years and I read a lot of medical mags while there. I don't mean at all to imply your situation is not genuine, just sharing my own personal knowedge of this. If I offended you I apoligize and do hope your situation gets better.

toolman    Posted 07-19-2003 at 16:49:56       [Reply]  [No Email]
i think a specialists has to be the one to diagnose it up here in canada anyways and i don,t think they accept it as a disabling disease for any kind of pension, i could be wrong , but as far as i know they don,t and i don,t know of many meds that help improve it , like i said it,s something you have to learn to live and deal with, and one thing mark said a while back is right while your doin something you feel better at least i do it,s when i stop that i stiffen up and you have to force yourself to go do things sometimes, some people may abuse it like some people abuse everything but for those that do have it it,s real and it is a problem.

Blue Duck    Posted 07-19-2003 at 17:13:13       [Reply]  [No Email]
If anyone is interested, My wife has been able to control, not eliminate the pain with diet (not a weightloss diet as she is not overweight). I could let you know what she is doing, and why it is helping

toolman    Posted 07-19-2003 at 17:49:18       [Reply]  [No Email]
i think that would be a great idea, most of us just try to live with it , thanks.

LH    Posted 07-19-2003 at 09:27:04       [Reply]  [No Email]
Good idea, my wife is a nurse practioner and suffers from fibromialgia also, like Ludwig says massage does help some but another problem many sufferers have is becoming overweight from not getting anough excersize. Lots of newer drugs are being used to treat the symptoms with mixed results

Blueduck    Posted 07-19-2003 at 15:42:54       [Reply]  [No Email]
My wife has been able to aleviate alot of her symptoms by a DRASTIC change in diet...and NO drugs! Gods plan for our bodies and what we put in them REALLY WORKS!!!! We werent designed to eat, or drink, or breathe chemicals.

Cindi    Posted 07-19-2003 at 07:13:37       [Reply]  [No Email]
I don't think it's carzy, I think it's cool, and I bet you'll get a lot of support.

Blue Duck    Posted 07-19-2003 at 07:04:23       [Reply]  [No Email]
Does anyone have any full sive plans for a chuck wagon they would be willing to donate?

DeadCarp    Posted 07-19-2003 at 06:59:53       [Reply]  [No Email]
Sounds like a lotta fun, and it should get good media coverage - you'd need a borrowed wagon to do it this season though :)

Blue Duck    Posted 07-19-2003 at 07:03:05       [Reply]  [No Email]
Do you by chance have a working wagon?

Ron,Ar    Posted 07-19-2003 at 16:47:28       [Reply]  [No Email]
I do know of a fella that has several of these chuckwagons with rubber tires that he used to race and a widow who still has her deceased husbands wagon. They are a little smaller than a covered wagon ya see on TV.

Donna from Mo    Posted 07-19-2003 at 06:19:02       [Reply]  [No Email]
Sounds great if you can do it. Be sure and stop by and see me here, I live right on the old Santa Fe Trail, you might say... between Independence, Missouri, and Lexington, Missouri.

Blue Duck    Posted 07-19-2003 at 09:14:04       [Reply]  [No Email]
We,re almost neighbors... I live between Kirksville and Brookfield (MO)

Ludwig    Posted 07-19-2003 at 06:18:48       [Reply]  [No Email]
Well its not nuttier than my plan to travel 450 miles on a '70 snowmobile, at 25mph in the freezing cold.

One thing you might be interested in, my wife is a massage therapist and has treated a couple people with Fibromialgia with good results. Part of it, once the disease has started in, is mental. The person gets sore so they don't move as much, not moving as much lets the disease settle into their joints making them think they can't move as much so they move even less starting a vicious cycle. Massage helps loosen things up and get people moving.

One young fellow she worked on has moved on to go to college, and one older (60's I think) has gotten a part time job. Its hard work for the patient though, she can't give them an inch, they have to work for it too.

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